Do It Yourself Management of Chronic Disease

We can’t manage our chronic disease by ourselves, unless we quickly graduate from medical school and then become specialists. That’s not too likely with a new diagnosis that has an impact on your health. etsy NostalgicLinks However, to take a guess, even average people don’t see doctors much more than two hours over a year. And that may be a high estimate. But even if you spent a whole 24 hours out of your year seeing doctors and other health care professionals, that leaves you with the other 364 days to take care of yourself.

There is one thing I have learned on Twitter. That is that health literacy is the greatest predictor of health. In this context literacy means Grade 8 or better education. I would go further and say that with a chronic disease you need to be able to do even more – you need to learn the medical vocabulary of your disease so that the appointments you have with doctors are as effective as possible. Many of us have likely had the experience of having to wait for the next appointment to decide on a course of action because we needed time to educate ourselves on the choices [...] continue the story

Identity and Work (Permanent labor force non-participation)

When I was diagnosed with RA I was working part time in a bank as a customer service representative. The friendships with people I had known for years and with fellow workers were important to me. But with RA fatigue and bad feet it became difficult to do that job as RA progressed. It was a gradual change but continuous and unwelcome. A TD Bank in New York. Surprised to see familiar company elsewhere. I started working part time in market research at that point and found a sit down job on the phone was far more possible for me. When the company owner found true love (and busted up two marriages in the process) two of us there decided that we could do the job so we made a deal to buy the company. It is so much easier to be the boss. Management accommodates your every need. I had a great collection of suns and garage sale art and really enjoyed talking to our clients and solving their problems. There was some friction. My partner at one point said that if she had known the extent to which RA would affect me she never would have gone ahead with the partnership. [...] continue the story