Christine Janus

Christine Janus Christine Janus has been the Executive Director of the Canadian Skin Patient Alliance (CSPA) since 2007. A skin patient herself, she has grown the ‘for patients, by patients’ organization to a nationwide support, education and advocacy organization serving affiliated patient organizations and the millions of Canadians living with skin conditions, diseases and traumas. Christine is an active patient advocate and works on a number of committees with the Best Medicines Coalition, has represented skin cancer patients on the Canadian Cancer Action Network and is currently involved in 2013 with the formation of a federal patient voice initiative. Christine represents skin patients in Canada here at home and globally, seeking to always pass on the message that skin disease is more than skin deep.

Under Christine’s leadership the CSPA has won 3 awards –for its excellent website, for its widely read national magazine ” Canadian Skin” (à propeau in French), and this last year for a very thorough analysis of access issues faced by dermatology patients in Canada called “ Skin Deep : A Report Card on Access to Dermatological Care and Treatment in Canada”. Under her watch the CSPA also offered skin, hair and nail patients their very own conference [...] continue the story

Kathy Kastner

Kathy Kastner Much like an actor, I am driven by language and interpretation.  However, I do not aspire to be in theatre, on tv or film. Instead, my passion and commitment to language is focussed entirely in the world of health.

As a non-healthcare professional, I am regularly aghast at the assumption – nay, expectation  – that we who are untrained and illl-equipped to understand medical jargon are supposed to know, interpret and act on the language of those trained in the field of healthcare.

I use every medium I can to ‘out’ my outrage, and to educate.

With The Health Television System Inc, I pioneered a hospital-based television network dedicated to reassuring patients and their families that they aren’t stupid just because they interpret ‘stool’ as a 3-legged seat; that ‘treat’ has nothing to do with dogs or children.  Patients are encouraged to ask questions. But there’s another assumption: patients know what questions to ask. I develop lists of questions.

My mission has been electrified by the digital world: I blog on two websites Ability4Life.com – for adult children caring for aging parents; BestEndings.com  about end of life choices, and all those scary and in comprehensible words: co-morbidiities, wound-care, vent, traech.

I ‘YouTube’ about confusing [...] continue the story

Shirley Williams

Shirley Williams Chief Transformation Officer

New Media Enthusiast and Advocate

Experience Enabler

Shirley is a result-driven and passionate leader. She has led numerous business transformation initiatives across the globe that has included Canada, US, South Americas, Europe and Australia.  Her 20 -year career has spanned Biotechnology, Brand & Generic Pharmaceuticals, IBM Global Business Consulting, Healthcare and New Media.

In addition to her own blogs on global leadership [William Pearl] and social media [Social Media Pearls], Shirley is a blogger for Pharma iQ , Huffington Post and currently produces her own talk radio shows including, Rise Of The Patient. Shirley has introduced the term COMsumers to reflect today’s informed and empowered consumer. Shirley helps organizations to become better through the eyes of the consumer, by improving the consumer experience.

Leveraging her talk radio show, business transformational know-how, Shirley facilitates engaging conversations, collaborations and performance to improve systems, processes and operations.  Academically, Shirley is a scientist with a Master of Science degree in Pharmacology. Shirley is also a certified practitioner and professional in Change Management (Prosci), Project Management (PMP/PMI) and Social Media (OMCP, Online Marketing Certified Professional). INITIATIVES 1. Rise Of The Patient. Elevating The Voices in Health Care to Drive Collaboration

There is a movement happening. It is a quiet one, however [...] continue the story

Michelle Sorenson

Michelle Sorenson Michelle Sorensen has been living with Type 1 diabetes since 1998, when she was 24 years old.  She was in the middle of graduate school, training to become a psychologist. She is now a member of the Ontario College of Psychologists and has a private practice in Clinical Psychology in Ottawa, Canada. Using a cognitive behavioural approach to therapy, Michelle helps patients with a wide range of issues.  Michelle has developed a speciality in counselling patients with diabetes. She combines her knowledge about changing thoughts, feelings and behaviours with the understanding that comes from personally living with Type 1 diabetes herself for over 13 years to help patients change their thoughts and modify their behavior.

Michelle believes adaptation to living with this chronic disease would be more manageable if more psychological support was available to people with diabetes.  She hopes to help fill this gap in diabetes care by helping diabetes health professionals become more aware of the ways in which they can support and educate their patients about issues like grief, accessing supports and changing the negative thoughts and behaviours that plague many people living with this challenging condition.  She speaks about various topics related to diabetes management, including counseling approaches like cognitive behavioral therapy [...] continue the story

Dee Christensen

Dee Christensen Dee Christensen is a writer, social advocate and the owner of Canada’s leading addiction magazine. This former street junkie turned entrepreneur used her life experiences and an academic background in Criminology and Social Work to found Recovery Wire Magazine. This common interest publication has become a vehicle for uniting the broader addiction community, and a medium to reach people who might not be ready to get help yet. As Editor in Chief, Dee is passionate about joining the fight to educate people about addiction, and end the cycle of isolation and recidivism. This grass roots magazine, written by people impacted by addiction personally, has become a major resource for addiction professionals and individual subscribers around the globe: from Canada to the United States, Australia, Italy, the United Kingdom and even China.

Derek Forgie of MTV Canada writes, “One would be hard-pressed to find a hipper, slicker, unapologetically honest approach to the important issue of recovery.” 

Dee credits her success to the everyday, hard working heroes in the mental health field that she met along the way. For every person who steered her in the right direction and cheered her on during her voyage back to life, she works tirelessly to pay [...] continue the story