Raising awareness of uterine fibroids: a collective responsibility

By Zal Press and Holly Bridges Eight thousand strong and counting. The voices of the women (and a few supportive men) of this organically driven nationwide collaborative are beginning to make inroads after a long two years. They are heard in traditional media, in online social media conversations, and in live events such as the second national forum in Toronto recently.

The biggest newspapers in the country have covered the issue. The late Barbara Turnbull, the Toronto Star feature health writer, brought attention to new treatments for fibroids.  Other Star writers highlighted the stories of personal suffering and courage of women who face limited choices in treatment and long, painful journeys to diagnosis. And The National Post ran a full-page feature on fibroids in a special supplement devoted to women’s health. Starting up conversations The strength of this collaborative, however, is its ability to turn online conversations into a support system that provides an easy way for sharing stories and information. Women suffer economic and social burdens, often hiding their condition from employers and families. In social media they have found solace in the experience of others, and gained knowledge of new treatment options that empowered them in their relationships with their physicians.

Despite these successes, [...] continue the story

“Listening to the Patient Voice” – a Planetree story

I’ve long been surprised that Planetree.org is not better known by everyone who talks about patient-centered care, patient engagement, etc. I attended one of their webcasts in April and wrote about a great booklet they discussed.

I’m taking the liberty of pasting in here an item from their latest e-newsletter, because it illustrates how they think and how things unfold as a result. __________

Listening to the Patient Voice How It’s Done at Platte Valley Medical Center

Including patients and families in the development of a truly patient-centered care experience formally took shape at Platte Valley Medical Center in 2008 with the formation of the hospital’s community focus group. Staff from clinical and non-clinical departments volunteer and are trained to participate in an interactive process to listen and respond to patients’ feedback through quarterly care-centered interviews. To date, we have completed eight sessions. Testimonies are then used to assist with critical problem solving, program development, and measure successes. Concrete action steps, developed with the patient and family, are used for house-wide staff training. Through a video presentation and newsletter, entitled The Patients’ Voice, hospital staff is invited to “Munch and Learn” sessions to hear patients’ stories and apply what they learn to their daily work.

Lessons Learned from our [...] continue the story