Pumping up the volume on patient voices | Health Council of Canada

Originally posted on the Health Council of Canada Blog.

Patient Commando Executive Director Zal Press writes a guest column for the Health Council of Canada blog as part of the release of the Health Council of Canada report  “How do Sicker Canadians with Chronic Disease Rate the Health Care System? ” Get the report here and watch their patient story video – a familiar face included.

 

I’m taking a biologic for Crohn’s disease. And I’m a lucky guy – my $30,000 annual tab is picked up by my wife’s benefit plan. But in five years, when I hit 65, we’ll be off her plan and I’ll be transferred to the Ontario Drug Benefit Plan.

I’m already fretting over what that future will bring. Will the continued financial strain on the health system foreclose on my access to this medication, and instead force a body-altering operation because it will cost the system less in the short run?

And will this decision be made by a cost-benefit analyst rather than by a collaborative agreement between me and my doctors?

US insurance companies have required multiple step therapies before approving many biologics, resulting in multi-year delays. In Ontario, the Exceptional Access Program has fallen behind in processing applications. The population [...] continue the story

Patient Commando attends Health Council of Canada’s National Symposium on Patient Engagement

During the Health Council of Canada Symposium on Patient Engagement Daniel Stolfi, star of Cancer Can’t Dance Like This, disclosed that his tipping point to becoming an engaged patient, came when he was being over medicated in error and suffering bad side effects but no healthcare providers were listening.

Healthcare leaders across the country came together to learn how to improve patient engagement and increase safety and improve outcomes at the Allstream centre in Toronto.

Daniel presented his patient story to inform the system on how to improve communications between doctors and patients and increase the state of collaboration. His presentation was funny, deeply personal and moving. The crowd was animated and laughing.

A report of the symposium is promised to be released this winter.

Be sure to sign up for Patient Commando’s newsletter for updates and to receive a free copy of our white paper:  On a New Frontier of Patient Engagement.