The Fringe Festival Pushes Patient Story Into the Fray

The Toronto Fringe Festival is arguably the city’s largest theatre event.  This summer from July 4-15, over 150 performances will be presented to an expected audience of 100,000. That’s a whopping 4% of Toronto’s population.

What makes the Fringe exciting is the process in how acts are selected for the festival.  Each year hundreds of creative applicants send in their ballot to have a show slotted for a Fringe playbill. With no judge or jury, the shows are picked at random, making for a wildly organic and impressive lineup.

Fringe audiences are accustomed to alternative theatre.  Which is why it’s the perfect environment to showcase the new, truthful, gritty, and sometimes slightly less glamourous stories.  In our minds The Fringe is also the ideal arena for patient storytelling.

Last year proved this with the highly acclaimed performance of Daniel Stolfi’s “Cancer Can’t Dance Like This”. Daniel’s show has since gone on to win the Canadian Comedy Award for Best One Person Show, and garner national attention.

This year will be no different. In fact this year’s program offers at least two patient story events for public consumption. Details of these shows below. Healing Through Theatre Host: Brian G. Smith (Second City Alumni) Panel: Zal Press (Patient Commando),  Dr. Jeremy [...] continue the story

We Listen. We Care. | Compassion & Choices

Leaders in the care of patients who face serious and life-limiting illness have designated November as National Hospice and Palliative Care Month, prompting more stories about both options. The Milwaukee Journal Sentinel gives a very good overview of palliative care and hospice in this Q&A with Dr. Diane Meier. The theme of this year’s observance is “We Listen. We Care.”

Listening is the No. 1 objective of our End-of-Life Consultation team (EOLC). Do you or someone you know face a serious illness? Do you have questions about palliative care or hospice? A Compassion & Choicesrepresentative will gladly answer any questions you or your loved ones have about what these options mean and how each can improve quality of life. Anyone can access an EOLC counselor at no cost by calling 800-247-7421.

Caring about the patient, especially at the end of life, is a key objective of our educational and advocacy efforts. Our goal is to change the focus of medical providers to the patient rather than the patient’s illness. This is the core of our principles for patient-centered care. As individuals face the end of life and try to navigate the health care system, their own values and choices should be paramount. Our seven principles — focus, self-determination, [...] continue the story

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I don’t trust my GP to manage my cancer follow-up | Globe and Mail Q&A

The question: I’m in treatment for early-stage breast cancer. When it’s done, I’ll be sent to my general practitioner, whom I have little faith in. I’ve had excellent, patient-focused care from medical staff treating my cancer. Should I find a new doctor or stick with this one who, for better or worse, at least knows my history?

The answer: Given the background information you gave me on your GP – reluctant to order tests, not a good listener, dismissive – you are right to be concerned. I’ve seen how well oncologists advocate for their patients; your fondness for them is well placed.

A study published this year in the journal Current Oncology found that 87 per cent of early stage breast cancer patients surveyed in Ontario preferred to visit their cancer specialist for routine follow-up.

Like you, most cancer patients in Canada are sent back to their GPs. So long as a follow-up plan is in place, it’s the best way to provide good quality, cost-effective care.

Sandy Sehdev, a medical oncologist at William Osler Health System in Brampton, Ont., said cases such as yours can result from a patient feeling that the GP did not act rapidly on a lump. Other patients don’t [...] continue the story

Humorous Healing | The Annex Gleaner

When you’re 29 years old, newly married, and suddenly diagnosed with an incurable disease, it’s hard to find things to laugh about.

That’s what happened to Zal Press more than 30 years ago. After he was diagnosed with Crohn’s Disease, friends and family started treating him differently. When they were around him, they were around him, they were all deeply concerned and they could never act casually. He was no longer a ‘person’; he became a ‘patient,’

Like most patients, he just did whatever the doctor told him, hoping the problem would be solved. “Just give me a pill so I can get on with my life,” said Press, reflecting on how he felt back then.

But after obeying doctors’ orders and being compliant for so long, Press stopped being passive. He began asking questions, he started looking Crohn’s Disease critically. In short, he took his healthcare into his own hands.

Today, Press is trying to encourage other patients to do the same with Patient Commando, the entertainment company he founded.

Located in the Bloor and Bathurst area, Patient Commando’s mission is “getting patients engaged with their own healthcare,” according to Press.

The company does this through live theatre, public speaking, and humour therapy workshops, giving [...] continue the story