Over 200 Artists tackle the Illness Experience

“Mira, Mira on the wall” was the refrain that came to mind when young Mira Berlin (MFA) presented her idea 3 years ago for an art show representing the personal illness experiences of artists. After she left my office, I thought about whether the refrain’s connection to the fairy tale was applicable to the concept.

Three years later, the fairy tale reference can be discarded. A collective of European academic, art and industry leaders has produced a vivid expression of illness through the eyes of artists working in collaboration with patients.

‘Perspectives – Art, Inflammation and Me’ is an initiative designed to add a different dimension to the current understanding of immune-mediated inflammatory diseases (IMIDs) and their impact on patients and society.  The exhibition debuted at the 9th Congress of the European Crohn’s and Colitis Organisation (ECCO) in Copenhagen, Denmark on February 20 with more than 100 unique pieces of art.

Mira was interested in the subjective experience of disease to showcase the potential of Fine Arts “to transcend the bounds placed on patients upon their diagnosis” and to highlight “the incredible power of images to demystify illness and reconcile us to disease, and even to death.” At the time, her thoughts were [...] continue the story

World IBD Day for the week

Its World IBD Day today so since it’s Saturday and every living creature with an appetite is out hunting down new prey, I’m going to celebrate the day for the whole week.

I’m biased, of course. I’ve been living with Crohn’s disease for over 31 years. It’s one of the family of nasty Inflammatory Bowel Diseases, (yes, Bowel diseases) that includes Ulcerative Colitis, but does not include IBS, or Irritable Bowel Syndrome (more on that in another post).

Since its such a gross topic (bowel disease, you can only imagine) I’ll skip the details of my experience and go straight to highlighting those individuals who have shared with us some remarkable stories. You’ll see the index below to get you started and every day this week you’ll see some of these stories and individuals highlighted on our home page.

Trust me. It takes a little bit of courage to talk about your toilet habits in public. It can be funny, but these folks aren’t getting paid to entertain a crowd at a comedy club. What they are doing is breaking down the stigma attached to these illnesses, and in so doing, are changing the world one story at a time.

Bravo to these articulate [...] continue the story