Appendix

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State of Patient Associations in Canada

Appendix A: Organizations reporting public policy dialogue and development activities

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a woman officer pick a binder of document on the row of file folders and paper that nicely management system on the office's shelves and holing it with her hand

Alberta Lung Association To engage lung disease patients, care givers and medical representatives to inform and educate government about the issues facing Albertans with lung disease and their families. By developing relationships and informing key political representatives who have oversight for research funding, supporting early detection efforts and providing additional support and treatment options for […]

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State of Patient Associations in Canada

Appendix B: Spending on Public Policy activities of every reporting organization

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a woman officer pick a binder of document on the row of file folders and paper that nicely management system on the office's shelves and holing it with her hand

Canadian Cancer Society / Société Canadienne du Cancer $1,728,226 Canadian Diabetes Association / Association Canadienne du Diabète $801,686 Parkinson Canada Inc. $344,181 Amyotrophic Lateral Sclerosis Society of Canada /Société Canadienne de la Sclérose Latérale Amyotrophique $326,196 Juvenile Diabetes Research Foundation Canada /Fondation de la Recherche sur le Diabete Juvenile Canada $318,674 Heart and Stroke Foundation […]

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State of Patient Associations in Canada

Appendix C: Disease specific non-profit groups without charitable registration

a woman officer pick a binder of document on the row of file folders and paper that nicely management system on the office's shelves and holing it with her hand
a woman officer pick a binder of document on the row of file folders and paper that nicely management system on the office's shelves and holing it with her hand

Acne and Rosacea Society of Canada Action Hepatitis Canada ACTION Ontario for People with Neuropathic Pain aHUS Canada Alberta Community Council on HIV Alberta Society of Melanoma Alliance for Open Access to Psychiatric Medications Arthritis Consumer Experts Be the Choice Bladder Health BC  Canadian Arthritis Patient Alliance Canadian Association of Pompe (CAP)  Canadian Association of […]

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State of Patient Associations in Canada

Appendix D: The differences between a registered charity and a non-profit organization

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a woman officer pick a binder of document on the row of file folders and paper that nicely management system on the office's shelves and holing it with her hand

We are sharing CRA’s information in full on the differences between a registered charity and a non-profit organization as their descriptions are clear and concise.[29]  “Registered charities and non-profit organizations (NPOs) both operate on a non-profit basis, however they are not the same. This page explains the differences between them. Registered charities Registered charities are […]

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State of Patient Associations in Canada

Appendix E: Program areas and field codes

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a woman officer pick a binder of document on the row of file folders and paper that nicely management system on the office's shelves and holing it with her hand

Social services in Canada[30] A1 – Housing (seniors, low-income persons, and those with disabilities) A2 – Food or clothing banks, soup kitchens, hostels A3 – Employment preparation and training A4 – Legal assistance and services A5 – Other services for low-income persons A6 – Seniors’ services A7 – Services for the physically or mentally challenged […]

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State of Patient Associations in Canada

Appendix F: Patient-Focused charities included in the report

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a woman officer pick a binder of document on the row of file folders and paper that nicely management system on the office's shelves and holing it with her hand

“Stop Diabetes” Foundation Inc. “Women Alike” (Breast Cancer Survivors) Society A Port in the Storm Inc. A.C.P.D. – Action Committee of People with Disabilities Society Aaron’s Apple Inc. Aboutface Craniofacial Family Society Abreast in the Rockies Dragonboat Assoc. Acoustic Neuroma Association of Canada Action Autisme Action CIND Adam’s Hope (A Quinte Learning Resource for Children […]